bpd-dylan-hall-deactivated20190 reading a paper on quality of life among 45-to-70-year-olds with Down syndrome: "Individuals expressed desire to be allowed go bed when they wanted to." queenshulamit chavisory @ Follow Jan 2, 2016 Imagine fullyarticulatedgoldskeleton lived in room and board that…

bpd-dylan-hall-deactivated20190 reading a paper on quality of life among 45-to-70-year-olds with Down syndrome: "Individuals expressed desire to be allowed go bed when they wanted to." queenshulamit chavisory @ Follow Jan 2, 2016 Imagine fullyarticulatedgoldskeleton lived in room and board that failed the burrito test. ("If you're not get up middle night microwave burrito, you live an institution.") No one stopped me from going bed, but did tell I had have my lights out by 10, house 10 next morning. When complained outpatient program needed more help than was getting, threatened care, where cell phone would taken away lose contact outside world. My case manager sounded so smug, like he caught out, said, "if really as helpless say, then need care." Like only options were struggling do things couldn't do, or surrendering institution. tried talk about these other people. always rationalized it away. (I told dad once caseworker e-mails wrote them, demonstrating extreme disrespect for privacy, "Well, she's probably making sure don't use internet goof off." 22 years old.) People tend mock idea telling adult bed. eat. etc.. is human rights violation, even though find outrageous absurd if anyone came into their lives same thing them. And this what people seem think disabled activists we're just enough understand some locked deprived all autonomy. phuk-ewe Here's paper: https://librarv.down-syndrome.orq/en-us/research-practice/06/3/ quality-life-ageing-down-syndrome/ treegona They want *anv* mentallv/developmentallv If vou're able advocate vour rights, "disabled enough" - vou wouldn't your rights. 248.753 notes